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Sore scalp, and hair loss

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Sore scalp, and hair loss
Author: AnonymousGuest
Post Fri Aug 04, 2000 4:10 am
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I am 30 years old. I have suffered for the past nine months of a very sore/red scalp. My scalp feels like I have a very tight pony tail in at all times. I have also now lost 80% of my hair.
I visited my doctor who prescribed a steroid lotion "betascalp" ??. This lotion did clear up the red rash quite quickly but the pulling sensation was still there, but mabey not quite as bad.
I also had a blood test taken which showed my Ferratin level to be very low (11.7). I have been advised that this is why my hair is falling out.
I have been on a course of iron for the past
3 months which is not helping one bit. My hair
continues to fall out every day.
I have my first visit to a dermatologist tomorrow
and hope that I am on my way to finding some answers.
I find my hair loss to be a very traumatic experience. I feel I have lost all confidence of going out socialising and now avoid mirrors.
I am seriously considering a wig. Has any one else tried one ???

Author: AmaleeGuest
Post Sun Aug 13, 2000 1:09 pm
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Hi everyone

Over a year ago, I was this site's first person (as far as I could tell) to post on burning scalp pain w/hairloss. I was extremely surprised by the onslaught of responses to my post...I truly thought I had a very strange condition, but it appears that BSS is a lot more common than one might think. After reading post after post, it seems that BSS is most common in women in their 20's and early 30's. Many report that the scalp is painful to the touch,and that the burning sensation is coupled with a 'prickly' feeling. Many seem extremely depressed about their conditon, to the point of requiring an anti-depressant...I'm one of these people.

I wish I could offer a cure, but I can only comment on medications/supplements that have slightly helped me, those that haven't...and meds that have worked for other people.

1. MSM - This is a popular supplement amongst those suffering from hair loss...both men and women. When I tried it about a year ago, after one week my hair loss was virtually nil...I was convinced that this way my miracle solution. However, after 2 weeks things were back to normal...but perhaps it will continue to work for someone else out there. Its a harmless supplement with no side effects, so theres nothing wrong with giving it a shot.

2. CoQ10. There is a woman at the hairsite.com forum who swears by it...she was experiencing BSS and hair loss as well but after taking a dosage of 100 mg. CoQ10 daily, she insists the burning has faded permanently and her hair loss has abated. I'm still in the process of trying this myself, so I can't comment much on it...but again, its a harmless supplement, so worth trying.

3. Finasteride. I tried taking half a Proscar pill (2.5mg...Propecia is 1mg) every day for 6 months...I saw nothing. I have yet to read a posting where a woman with hair loss has benefited from finasteride.

4. Minoxydil. I've been using a 2% solution for 2 and 1/2 years now. Taking minoxydil is a big decision as once you stop, any benefits you received in the form of new hair growth will fall out. So this is a treatment you must stick to. Its helped me a little bit...I have small vellous hairs sprouting due to the minoxydil...however, if I could turn back the clock 2 and 1/2 years, I doubt I would begin the treatment. The benefits don't seem to outweigh the hassle, the scalp dryness, and the lifetime commitment.

5. Saw Palmetto. I tried this for many months...I didn't see any slowdown in hair loss. Many people suffering from hair loss, however, seem to include this in their regimen.

6. Vitamins. There is a woman on the hairsite.com forum who swears by 50mc of Zinc per day, 100mc of B6 per day, and 3000 units of Biotin per day. She believes her hair loss ceased because of these vitamins...once again, it doesn't hurt to try. I'm about to start including these in my regimen myself.

7. Spirinolactone. I was on this for over a year...did not see anything. I would never recommend this drug...its so controversial amongst dermatologists for good reason - the side effects can be serious. I have yet to read a testimony where spirinolactone has significantly helped a hair loss victim.

8. Armour/Synthroid. Get your thyroid tested. Hypothyroidism may be the cause of your hair loss. Even if your results come back normal, ask your doctor to find out where you lie in the 'normal' spectrum...if you are close to the margin you may want to ask to be put on a thyroid med. This is what I did...I've been on synthroid for over 5 months now. I'm not sure if its working yet...I would like to try a full year before I make a final judgment. This is yet another woman whose test results came out normal, requested to be put on synthroid, and discovered that soon after yet hair loss stopped AND it grew back. BTW, if you haven't checked out the hairsite.com website, there are a couple gems in there.

9. Nioxin. I think their bionutrient cleanser is fantastic, but I've read on this site that it irritates some BSS sufferers. I find it very gentle and soothing to the scalp. It claims to remove DHT, which I'm not sure is actually true, but nonetheless I think its a great shampoo for hair loss sufferers and have used it for about 2 years now.

10. Nizoral. When I'm not using Nioxin, I use Nizoral about 2-3 times per week. If you are experiencing some dermatitis, this will clear it up. I've read that many people attest that Nizoral will slow down your hair loss. I haven't used it long enough to confirm this.

Theres GOT to be more but I'm too sleepy to continue...I'm in Thailand right now for the summer and just got back from a camping trip today. I will post again when I think of something else. I hope what I've written is of some use to someboday out there...we really need to help each other...in the form of advice and support, if we are going to pull out of this BSS condition and hope to get some of our hair back...or at least stop the hair loss. There is so much we can do to help ourselves if we put our minds to it, b/c surely no one else who is a nons-sufferer would be as committed to our cause. I'm currently considering compiling a petition for more funding on BSS...would any of you sign up for it?

Please write and let me know your thoughts. Keep strong and don't let all of this get you down...talking about it with each other really helps.

Amalee

Author: anonGuest
Post Tue Aug 15, 2000 9:30 pm
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What is BBS ?

Author: AnonymousGuest
Post Sun Aug 20, 2000 10:41 am
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Burning Scalp Syndrome

Author: AnonymousGuest
Post Sun Jan 21, 2001 5:17 pm
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Regarding Burning Scalp Syndrome: My sister suffers from a nearly constant burning sensation on her scalp and has for the past five years. She has experienced some hair loss but not extreme. Her scalp is sensitive to blow drying and nearly any hair care products she has tried during the past several years. Her dermatologist has diagnosed her as having inflammatory seborrheic exzema. She believes this is incorrect because she has no scaling or sores, only slight redness over her scalp. Her M.D. prescribed an antidepressant. I'm not sure that she has continued to take it. Thank you to Amalee for your product recommendations. My sister has become fearful of trying anything new at all. Is there a website or book that you would consider to be the best resource about burning scalp syndrome?

Author: AmaleeGuest
Post Tue Jan 23, 2001 7:54 pm
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Sore scalp, and hair loss

The link mentioned by Rachel above is the only research I have come across on Burning Scalp Syndrome...it seems to be too new a phenomenon and unfortunately not much is known about the causes. There are quite a few women who post on the hairsite.com women's forum who have burning scalp pain and hair loss...I have found their stories to be supporting if only because it reminds me that I'm not alone. You can find lots of suggestions for treatment there...some of which have actually greatly helped some women. I wish I could give you more info, but I haven't come across anything else on BSS. Last year I become so disheartened about my condition that my doctor put me on an antidepressant, which I was worried would make the hair loss even worse. Luckily I don't see that much of a difference in terms of hair loss, and the medication has really helped put me in better spirits...so maybe it could at least help your sister feel a little better. Good luck and if I learn anything else I will be sure to post it here...

Amalee

Author: BelialaGuest
Post Fri Jan 26, 2001 2:27 am
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I am on extremely low-dose Elavil (amitriptyline) and Neurontin for the burning. These medications somehow alter the firing of the nerves, reducing the perception of this type of pain. I don't think they're the culprit in my increased shedding, but who knows. I've heard hairloss is a relatively "common" side effect with these drugs. I'm not sure what "common" means - 1 in 100? I would recommend them if the burning is so bad it's ruining ones sleep, concentration, etc. The drugs haven't cured me, but they in combination with ibuprofen have put the pain back in the tolerable range. I'm extremely sensitive to the sedative side effects though and really wish this condition would go away so I wouldn't have to take them.

Author: BelialaGuest
Post Fri Jan 26, 2001 2:30 am
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What REALLY helps my Burning Scalp Syndrome is....not brushing my hair. This definitely isn't practical most of the time, but on days I don't go out in public I don't even bother. After 3 days in a row of not really brushing it (just enough so it doesn't become a matted mess), I feel SO much better. I really wish the cavewoman look were in style.

Author: AnonymousGuest
Post Mon Jan 29, 2001 1:47 pm
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Kevin: I am a 40 year old female and have an 8 year old daughter and 5 year old son. About 2 years ago my daugther and I started to lose a lot of hair and the shedding has continued. I have lost about 70%of my hair and my daugthers is also very thin. My 5 year old son has not lost hair though he has never grown a full head of hair. His hair is like a baby's scalp very thin and patchy. We have been to doctors of all kinds, had blood tests, scalp biopsys etc. Nobody seems to know what is wrong. The scalp biopsys revealed that I have FPB. All blood tests on my daughter and myslef are negative. My scalp is very inflammed and red and sore and feels like it is being pulled all the time. My children do not have these symptoms. Have you ever heard of whole families loosing there hair? Strangely enough, my husband has had no loss. He still has a full head of hair. Do you think we could have been exposed to something 2 years ago or do you think something could be in our enviornment now that is causing it? Any information would be greatly appreciated. I am so desparately frustrated. Thank you.

Author: TabithaGuest
Post Sun Feb 04, 2001 11:49 am
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Hello everyone; i am 27 years old (F). i have been experiencing a slow diffuse hairloss all over my body for the past 7 years (underarm, pubic, head, etc) with scalp pains like i have my hair in a tight pony tail. Right now i have lost about 50% of my total hair count. i have done every single blood test known and everything is normal. i did do a scalp biopsy which showed infalmmation but no cause. i am beginning to think there maybe a fungus or some sort of metal poisoning. But i do not know where to go to get these test done. My dermatologist did recommend Cq10 100mgs a day for the pain and i swear to god it is like a miracle after about a week i had no more scalp pain. she said the inflammattion caused my blood vessels to constrict and this allowed the blood to flow to my scalp more easily by clearing up the inflammation. anyone who suffers from scalp pain should give this a try, i have enough to worry about going bald without having to suffer pain at the same time.


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